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cat (isthis4real)


March 28, 2007


Alabama


10/26


Brain Cancer


gbm


10/4/06


Stage 4


Grade 3


Re-excision Surgery


It has taken my husband's personality and my sense of humor


Severe Headache, personality, vision, coordination changes


10/06 resection
he is no longer the man I married tumor was in left temporal lobe


11/06-12/06
tolerated radiation and low dose of temodar quite well until the 4th week, then he became extremely fatigued.


Nothing early on with the low dose, extreme fatigue with the high dose/ On his 4th round, sleeps 15 hours or more a day. Little appetite. Has been nauseated on and off.




isthis4real's Cancer Blog

March 28, 2007

GBM hellViews: 292

So here I am on a Wednesday night waiting for Lost to come on and I find this site. I think maybe I can find others on this journey. I know very little about blogging , so this may be a little weird. How can there be a disease so horrific that it robs families of everything? That the connections once felt become disconnected? Maybe I am just having a pity party for myself. My husband no longer confides in me, he cannot even communicate well-can’t find his words and gets so frustrated. Here I am trying to be Mary Sunshine, coaching him, only to get the brunt of his frustration. Yes, cancer sucks. It finds me wishing that the end would come soon and then feeling guilty for the thought.I have to wonder why , after taking parts of his brain/personality that MD’s continue to offer the latest and greatest “treatment” because we have been told that it is not curable..so why do they offer drugs and radiation that just extend days instead of being honest about the impact these things will have and that maybe just sometimes, enjoying your life without the surgery, drugs, radiation may be better for everyone? Is the need to protect life so ingrained in us all that we can’t let go of it? That we preserve at all costs?

Welcome Cat! I am so glad you found this group. I too am waiting for Lost to start. haa haa

Cancer Sucks! I can relate to a lot of things you are saying. I found that it was too hard trying to talk to people who didn’t have cancer and I wasn’t the type to go to a support group. I built this system so that we can all vent and find others who get it. Hope to hear more from you. off to have ice cream and watch Lost!

Cat – welcome. Stop beating yourself for your feelings. Cancer is tough. I’ve asked the Lord to give you the help you need to get through this. Your feelings are normal so don’t feel bad.
If it helps any, remember that the cancer has taken your husband – the person you are dealing with is not him. Doesn’t make it any easier, but if he were well, he wouldn’t do or say the things he’s doing and saying now.
As for doctors – you have to understand. They have a one track mind – keep the person alive. That’s not always the best, but here again, the person who has the cancer must decide these things. Nothing is easy. Take it one day – one hour at a time. Remember your husband’s frustration is against himself, but you’re the first target in his way. Hang in there.
Hugs!
Karen

Cat! We are all family, You can reach out and we always here 24/7. We keep our family here in our heart.

“We need to take care of each other”

Hug’s all around were needed.

Sherri

Sorry for the Spelling.Some times my fingers run a muck!

Sherri


Isthis4real's Stats

Posts: 2
Photos: 0
Events: 0
My Supporters: 4
Comments: 6
Views: 669



My Supporters:

 Sherri

 tabby6680

 Sue 
Don't know how this works - typo - Jim died Sept 20

 logan culver 
HI my name is logan and i am 25 yrs old with gbm and im trying to find people my age with it , just thought we could support eachother!


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